Exploring the hidden burden of living with Glanzmann thrombasthenia

You can take part in this study if you are 16 years old or older and have been told by a doctor that you have Glanzmann thrombasthenia. You don't need official medical records for us to confirm your diagnosis because GT is so rare and this study focuses on your personal experiences, not medical tests.

Caregivers can also join. This means if you are a parent, partner, brother or sister, or another family member who helps someone with GT, we would like to hear from you. For young people under 16, a parent or legal guardian will need to give permission, and the young person also needs to agree to take part if they are able to.

If you decide to take part, you will be invited to a single interview. This interview will last about 45 to 60 minutes and can be done by video call or phone, whatever you prefer. During this chat, you'll be asked to share your experiences of living with GT, or caring for someone with GT. We might talk about your daily routines, how you feel emotionally, your school or work life, your relationships, what it's like dealing with healthcare, and any difficulties you face. You don't have to answer any questions you don't want to, and you can stop the interview at anytime. With your permission, we might record the interview to make sure we accurately capture what you say. As a thank you for your time, you will receive a £50 digital voucher.